Surgery and Life

 I got the call from the surgeon's office the other day. After some discussion, pre-admission testing will be done on January 4, 2021 and surgery will be done on January 5, 2021. This will be done by Dr. Toyota at Temple University Hospital. This also means that I got my wish and I get to have Christmas with my kids with no issues.

I thought that finally having a date would be a relief and I could make plans but all it has done thus far is ramp up my anxiety. All I can think of is the surgery to the point where I cry. I need to focus on my kids and getting my Christmas plans in gear. I want their day to be special, not Mommy all depressed in the corner.

My friend Preston assures me that I will be fine. He tells me that as long as he has known me (since high school) that I get thrown difficult situations. I usually fall down, plan a comeback, and then get up and push through everything thrown at me. He says that it makes me incredibly strong. I just need to find that strength.

Work is going well however I'm, of course, worried about how long I am going to be out for recovery. I'm also worried about possible accomodations that I may have to have afterwards, like oxygen. I want to be able to do my job to the best of my ability. Everything is up in the air right now.

I think that all the uncertainty is part of what is effecting my anxiety.

The kids are back home with me and it's meant the world having them here. We worked as a team yesterday to get the living room straightened up and we put up our Christmas tree. They kindly informed me that we don't have enough ornaments and we need more so that's on deck for today. We are also finishing up decorating elsewhere in the house.

Right now, Christmas is my focus. My kids are my focus. My bear is my focus. He's been helping look ahead to the healthy future I will have. He means more to me than I can put into words right now.

The surgery has to fall to the background. Present, and attended to, but not my primary concern. I can do this.

And So, She Cried

 This may be another long and rambling post. Bear with me.

I've been sick off and on since March/April with "bronchitis/asthma". I had a nasty cough and shortness of breath that just progressively got worse and worse. I finally had enough and headed to the emergency room on November 2nd. I explained everything to the doctor, as well as my medical history. He decided to do a CT scan of my chest. The results came back that I had a blood clot in my lung.

I have Factor V Leiden (a form of thrombophilia) and I have had clots in my lungs before so I figured I knew the drill. Boy, was I wrong. They gave me two Lovenox (blood thinner) injections and transported me to the hospital by ambulance, where I was admitted. I was started on I.V. Heparin (another blood thinner) and I figured I would be in the hospital for a few days. Wrong, again.

The pulmonologist came in and explained that the blood clot in my lungs was very large. He said that I may have to undergo surgery to have it removed and that he was going to consult another doctor from Temple Hospital in Philadelphia the next day. He said surgery had two options, a minor and a major. I hoped and prayed for the minor option. After the first consultation, the doctor gave me a printout that was a detailed description of the major surgery and I cried for two hours straight.

A few days later I was transferred (again by ambulance) to Temple Hospital for evaluation. I had a million tests, saw a dozen different doctors and specialists, and was pumped full of meds. I kept praying for the minor surgery throughout it all but that wasn't to pass.

My official diagnosis is Chronic Thromboembolic Pulmonary Hypertension (CTEPH). This means that the clots I have in my lungs are causing strain on my lungs as well as my heart. If not treated, over time the increased pressures will weaken the heart muscle and the heart will weaken and eventually stop functioning normally. Unfortunately, due to size and location and the pressures in the heart, I am going to have to go with the major form of surgery, called Pulmonary Thromboendarterectomy (PE or PEA) surgery.

I'm not going to lie, I am terrified.

During surgery my body will be cooled, they will open my chest and they will put me on a heart and lung bypass machine. They will removed the clots, sew me closed and then warm me back up. I'll be in ICU for a day or two. For about six weeks I won't be able to drive or lift anything. I'm going to have a scar that will be at least a foot long.

I'm worried and I cry about so many things. Complications. Will the scar turn off men? (My special friend assures me he's fine with it.) Will my kids be ok? I'm not going to be working for a while, so I worry about bills. My job is protected but they aren't going to pay me if I'm not working. How soon will I heal? How bad will the pain be?

So many questions and a million more swirl in my head daily. This week I am looking into making arrangements for my kids and power of attorney for medical decisions which may sound ghastly but it's a necessary evil. I need to be prepared for the sake of my kids.

That's the update of my current situation. I still cry on the daily and probably will up until and after surgery. My friends (especially that special man) have been amazing, listening to me vent and just talk. I joined an online support group and it has been a wealth of information.

One day, in the future, the tears cried will be happy ones.